Malnutrition and seniors: When a relative doesn't eat enough

Malnutrition and seniors: When a relative doesn't eat enough

At 82, your aunt is still beautiful, with a slender build and great charm. Active and outgoing, she recently moved to a retirement community where she hikes, plays bridge, and entertains her fiance and large extended family. By all objective measures, your aunt is thriving, but in fact, like many older Americans, she's malnourished.

According to some estimates, as many as 85 percent of adults in long term care facilities and more than half of all seniors cared for at home suffer from undernutrition or malnutrition — low or dangerously low levels of protein and other nutrients. But a growing number of active, independent older adults also are malnourished, especially women who live alone, minorities and low-income seniors. Experts say that spotting people who are clearly in trouble — those who are losing weight and muscle tone or becoming weak and confused — isn't difficult. The real challenge is identifying people who appear well nourished but aren't.

Tracking the causes of malnutrition

At first glance, the causes of malnutrition seem straightforward: too little food, a diet lacking in nutrients or absorption problems. But malnutrition is much more complex, a web of physical, emotional and social problems that traps vulnerable people in a self-perpetuating cycle of dependence and declining health.

For instance, older single adults, even energetic and self-sufficient ones like your aunt, often don't cook for themselves; unless invited out, their typical dinner may be nothing more than a handful of popcorn or a cup of tea. Carried on for long, a nutrient-poor diet accelerates the loss of muscle mass and strength that normally comes with aging. Shopping and preparing food become more difficult, which reinforces the tendency to subsist on easy but empty fare — toast, cold cereal, saltines. Eventually, the chronic lack of nourishment leads to increased frailty and dependence, which in turn can trigger depression — itself a major drain on appetite.

Malnutrition weakens the immune system, increasing the risk of pneumonia and other serious infections and exacerbating existing health conditions. And it can also contribute to mental confusion. Very ill or disorientated people are unlikely to eat well, if at all, and they're more likely to end up in a hospital or long-term care facility, where they're vulnerable to pressure sores, infections, post-surgical complications and further malnutrition.

When does malnutrition begin?

If the scenarios are complicated, so are the factors that lead people to eat poorly in the first place. Often, the trigger isn't a single event, but a cascade of difficulties, many of which are common among people who are aging:

  • Chronic illness. Older adults may have debilitating, long-term conditions that affect their ability to shop, prepare meals or feed themselves. What's more, both chronic and acute ailments often suppress the appetite even as they increase the body's need for nutrients. Dementia, Alzheimer's disease, alcoholism and other illnesses that affect mental functioning also have a profound influence on appetite and on the capacity to prepare and eat healthy meals. Caregivers also are often at risk, neglecting themselves while they tend an ailing partner.
  • A recent hospitalization or nursing home stay. Acute illness or surgery can take a tremendous toll on the health of seniors, often resulting in loss of appetite, weakness, weight loss and debilitation.
  • Depression. Although frequently unrecognized and underreported in older adults, depression affects as many as 6 million Americans over 65, including more than a third of those in nursing homes. As with other aspects of aging, the reasons for depression are complicated and interrelated: grief, loneliness, isolation, failing health, retirement, lack of mobility, concurrent illnesses such as Parkinson's disease, cancer, or diabetes, medications and malnutrition itself, which makes depression worse.
  • Alcoholism. It's not clear how many older adults have alcohol-related problems, but experts say the number is far larger than suspected even a decade ago. And alcoholism is a leading contributor to malnutrition — decreasing appetite, destroying vital nutrients and frequently serving as a substitute for meals.
  • Malabsorption. Some of the physiological changes that occur with aging affect the way the body absorbs and uses nutrients. In many older adults, the production of certain digestive enzymes and acids diminishes, interfering with protein breakdown and with the absorption of vitamin B12, folate, and possibly calcium and iron. Lack of vitamin B12 can have a devastating effect on the nervous system, leading to an unsteady gait, muscle weakness, slurred speech and psychosis — signs and symptoms similar to those of such age-related diseases as Parkinson's and Alzheimer's. Other illnesses — cancers of the gastrointestinal tract, inflammatory bowel disease and even diarrhea — can interfere with absorption.
  • Medications. Many drugs commonly prescribed for older adults can contribute to malnutrition by suppressing appetite, altering the way food tastes, causing nausea and vomiting, or interfering with absorption. Offending drugs include some antidepressants, certain blood pressure and osteoporosis medications, and even common analgesics such as aspirin. The problem is often compounded because many older people take several medications, all of which may affect the ability to eat and digest nourishing foods.
  • Difficulty chewing and swallowing. Dental problems, including gum disease, cavities and poorly fitting dentures can affect the taste of food and make chewing nearly impossible. When people with chewing problems do eat nutritious foods, they may have trouble digesting them. A dry mouth — a side effect of many drugs — and diseases such as Parkinson's that affect the nervous system can interfere with swallowing.
  • Diminished taste and smell. For most people, food is as much about comfort and enjoyment as it is about survival, and this may be especially true as people age. Yet taste and smell often diminish later in life, robbing food of much of its flavor. Although some sensory loss seems to be a normal part of aging, certain medications and diseases can make matters worse, especially Alzheimer's, which affects the pathways in the brain related to the sense of smell.
  • Restricted diets. Seniors are more likely than any other group to have dietary restrictions, including limits on salt, fat, protein and sugars. Although such diets play a central role in managing many medical conditions, they can be so bland and unappealing that older adults simply stop eating. For that reason, some nutrition experts recommend rethinking restrictive diets, noting that malnutrition is more detrimental to overall health than rich or salty foods are.
  • Limited income. Some seniors with limited incomes go hungry, especially if they're taking expensive medications. It's not uncommon for older adults to have to choose between drugs and groceries at the end of the month when Social Security checks are stretched thin.
  • Loneliness and isolation. One of the biggest contributors to malnutrition is a solitary life and the loneliness, depression, grief, boredom and fear that often go along with it.
What to look for

The signs of malnutrition are often hidden, especially in people who don't seem at risk. To help uncover problems before they become more serious:

  • Quiz older people about what they eat, but don't rely on self-reports alone. Try to spend time with them during normal meals at home, not just in restaurants or on special occasions. If you have an older friend or family member in a hospital or long term care facility, make a point of visiting during mealtimes. When you're concerned about weight loss, request a calorie count from the hospital or nursing home dietitian.
  • Look for physical problems such as poor wound healing, easy bruising and dental difficulties.
  • Know what drugs older family members take and how they affect appetite and digestion. Many commonly prescribed medications can reduce hunger and prevent nutrient absorption.
  • Ask an older person's doctor to check certain protein levels (serum albumin, prealbumin or retinol binding protein levels). Despite some drawbacks, these tests can often help identify chronic malnutrition.
What you can do

Malnutrition is a complex problem, but the solutions can be surprisingly simple. Even small changes make a big difference in an older person's health and well-being:

  • Enrich spartan diets. To boost nutrition, encourage seniors to spread peanut or other nut butters on toast and crackers, on fresh fruits such as apples and bananas, and on raw vegetables. Other suggestions include sprinkling nuts or wheat germ on yogurt, fruit and cereal; adding extra egg whites to scrambled eggs and omelets; and melting cheese on sandwiches, vegetables, soups, rice and noodles.
  • Restore life to bland food. Try to make special diets more appealing by using lemon juice, herbs and spices and by varying the texture, color and temperature of foods. If loss of taste and smell is a problem, experiment with strong seasonings and flavors. Careful chewing can sometimes increase enjoyment because more flavor molecules come into contact with taste receptors. A dietitian can also suggest ways to perk up dull meals.
  • Plan between-meal snacks. This can be particularly helpful for people who get full quickly. A piece of fruit or cheese, a spoonful of peanut butter, even a milkshake for people who aren't lactose intolerant can add nutrients and calories.
  • Use nutritional supplements. Undernourished seniors are especially likely to be deficient in protein, vitamins B-6 and B-12, folate, niacin, vitamin D, calcium and zinc. Supplements are important because they can help supply missing nutrients, but they can't provide protein or needed calories and shouldn't become a substitute for meals.
  • Consider outside help. If an older adult is very frail, consider hiring a home health aide to help prepare meals or investigate Meals-On-Wheels and other community services, including home visits from registered dietitians. Local churches and civic groups often have volunteers willing to shop and cook for seniors who live alone. Your department of health or community hospital can usually provide information on programs in your area.
  • Engage doctors. Talk to doctors about changing medications that affect appetite and nutritional status and about screening for nutrition problems during routine office visits. Be sure to inform doctors if you notice that an older adult is losing weight. And consult a dentist about oral pain or chewing problems.
  • Make meals social events. This may be the most important step in curbing malnutrition; older people clearly do better when they have company. Drop by during mealtime or invite seniors to your house. Or try eating out on a regular basis, which can boost spirits along with appetite. Take advantage of discount meals at earlier hours, and ask for small portions of food. If you can't share meals with the older adults in your life, encourage them to join programs where they can eat with others or arrange for them to have meals with friends. In one study, older adults who attended nutrition classes improved their nutritional status, but the change seemed to result from the social interaction the classes provided, not from the information they received.
  • Encourage regular exercise. Many seniors, even those with serious health problems, can benefit from daily exercise — it stimulates appetite, helps depression, and strengthens bones and muscles. Exercising with others also provides motivation and social interaction.

Long term care for your parents: Plan ahead

Long term care for your parents: Plan ahead

If you're considering long term care for your parents, don't wait too long to start the discussions. If you wait until one of your parents is injured or sick, you might find yourself under pressure to make a hasty decision that everyone may later come to regret. Get to know your long term care options now and start the discussions with your parents early.

Types of long term care

Long term care ranges from some scheduled help around the house to 24-hour care in a nursing home. The point of long term care is to help your parents maintain as much of their independence as possible by helping them with the things they can't do any more, whether it's the weekly shopping or bathing and dressing. This independence is balanced with keeping your loved ones safe. Knowing that someone's there to help can take stress off them and you, too.

Several levels of long term care exist. When choosing long term care for your parents, get to know what to expect from each level of care. This will help you pick the type of long term care that's most appropriate.

  • Home care. Home care includes medical care — usually nurses who come to your parents' home if they can't go out. But this category of long term care also includes help around the home. Home health aides or personal care service workers can visit daily to help your parents bathe and get dressed. These aides can also assist with housekeeping, meals and shopping. How often these services are needed is up to you and your parents.
  • Adult care. Adult care programs are a type of long term care that offers social interaction and meals from one to five days a week, depending on the program. Some adult care programs provide transportation to and from the care center. Activities often include exercises, games, trips, art and music. Some adult care programs offer medical services, such as help taking medications or checking blood pressure.
  • Senior housing. If your parents can no longer live in their house but they don't need continuous long term care, you might consider senior housing or retirement housing. These are often rental apartments that have been adapted for seniors, including railings installed in the bathrooms and power outlets placed higher on the walls. Other services often offered by these senior housing communities include meals, transportation, housekeeping and activities.
  • Assisted living. Consider assisted living if your parents need more help than senior housing offers, but they still want to remain as independent as possible. Assisted living staff can help your parents take their medications on schedule, help them with bathing and dressing, and provide some medical care. Some assisted living facilities also have on-site beauty shops and health services, such as a medical clinic.
  • Nursing home. Nursing homes offer 24-hour nursing care if your parent is recovering from an illness or an injury. They also offer end-of-life care. Nursing home services are mostly for people who need more medical care than other long term care options can offer, such as wound care, rehabilitative therapy and help with respirators or ventilators. Personal care for bathing, dressing and going to the bathroom are also offered at nursing homes.
  • Continuing-care retirement community (CCRC). CCRCs offer several levels of care in one setting. The idea is that your parents can stay in one place for the rest of their lives rather than moving each time they need a new level of care. Your parents might choose to move into a senior housing apartment while they're still healthy and independent. When they need more help with daily activities, they can move to the assisted living area of the complex. For more care, they can go to the nursing home, which is also located in the building. You usually pay a fee or endowment to enter the CCRC, rather than paying monthly for rent and services.
How to choose the right long term care facility

With all the options available, selecting a long term care service can be overwhelming for you and your parents. Follow these steps to make the process easier:

  • Decide what level of service your parents need. Will your parents need help with everyday chores, or will they need nursing care? This can help you decide what type of facilities to look into.
  • Ask your parents what they would prefer. Would your parents prefer certain options, such as a smaller facility, a certain location or certain living arrangements, such as a single room?
  • Consult with your parents' doctors. You'll need your parents' permission to do this. Your parents' doctors can also put you in touch with agencies that can help you identify your parents' needs and make recommendations on their care.
  • Decide how much you can afford. Will you be paying for the long term care, or will your parents be paying? Do you need facilities that will accept Medicare or Medicaid?
  • Make a list of facilities within a half-hour's drive of your home. Call the facilities closest to you first. Being close to your parents can make the transition to long term care easier for them and for you.
  • Call to ask about prices, services and vacancy. Ask about monthly fees for care. Find out what services are available at the moment and if you'll have to pay extra for them. If you have to find a long term care facility right away, it won't do you any good if the facility has no vacancies. If you're planning ahead, you might be able to put your parents on a waiting list.
  • Visit. Schedule a tour of the facility for you and your parents. Gather first impressions: Does the facility seem safe and friendly? Does it smell OK? Is the temperature comfortable? Do the residents seem happy? Are there enough caregivers on staff? What are the rooms like?
  • Ask questions. What are the rules? Can your parents choose when to get up and go to bed? When can you visit? What social activities are offered? How often will your parents receive care? Can your parents continue to see their personal doctors? How many people are on staff during the day and overnight? What type of training does the staff go through?
  • Visit again. Observe staff members while they're working. Talk with the residents. Visit at different times of the day. Make an unscheduled visit.

Also ask for advice from friends and relatives who have experience with long term care facilities in your area. Call the Better Business Bureau to find out if any complaints have been filed against the facility.

In the end, follow your instincts. Choose a place that treats your parents with respect and makes them feel comfortable. If the rooms are nice but the staff isn't caring, don't let your parents go to that facility.

Paying for long term care

Long term care can be expensive. In many cases, it will be up to you or your parents to pay out-of-pocket for the services. However, you do have other options, including:

  • Long term care insurance. Your parents pay an annual premium for long term care insurance. In exchange, when they need care, the insurance provider pays a daily rate to the long term care facility. The daily rate differs, depending on the insurance policy. If your parents need long term care now, it might not be possible to get insurance. But if your parents are healthy and could need care in the future, you might want to suggest it to them.
  • Medicaid. Medicaid is a joint state-federal program that helps your parents if they meet certain income requirements. Medicaid usually covers nursing home care only after an illness or injury. Whether Medicaid covers assisted living or a continuing-care retirement community depends on what state you live in. Medicaid coverage differs in each state, and some states might cover home care services.
  • Medicare. This federal program is for people over age 65 and people with disabilities. It doesn't cover assisted living, but in some cases it will cover home care services. Medicare covers nursing home care for up to 100 days, but your parents qualify only if they've recently been in the hospital for at least three days.

Deciding whether your parents qualify for any of these payments can be difficult. Discuss your options with your lawyer, accountant, a social worker or an area agency on aging. Also talk to your parents' doctors, who might be able to connect you to community resources.

Discussing long term care with your parents

The idea of leaving their home or receiving in-home help for everyday activities can be distressing for your parents. That's why it'll be important for you to include them as much as possible in the selection of a long term care service. Try these tips for talking with your parents about long term care:

  • Plan ahead. Waiting until your parents need long term care isn't the best time to bring up the subject. If your parents are sick or injured, it may be difficult for them to participate in the selection of the facility.
  • Listen to your parents' concerns. Let your parents know you understand their concerns. Point out the benefits of long term care services. Remind your parents that their safety is your primary concern.
  • Listen to your parents' preferences. Include your parents in the decision making. Find out what kind of facility they would prefer.

It might not always be your decision whether your parents leave their own home. If they're mentally competent, they have the right to choose where they want to live. Your parents' doctors can decide whether they're competent to make the decision to move.

Understand the anxiety your parents might have about leaving their home. Involve them as much as possible in the decision-making process to help them feel better about where they'll be living.

Home safety: Make your home safe for your parents

Home safety: Make your home safe for your parents

You've invited your aging parents to your home for a special occasion or an extended visit. You spend time tidying up or arranging the guest room for their stay. But to ensure your parents' visit is both enjoyable and safe, consider these simple home safety ideas to make your home more accommodating. Don't worry — no hammer and nails required. These easy and temporary home safety changes will ensure that you'll spend less time worrying and more time visiting with your family.

Gauge your parents' needs

If your parents live close by and you visit them often, you probably have an idea of your parents' health and level of independence. Follow their lead when making safety changes to your home. For instance, if your mother keeps dishes in her house in lower cabinets because she can't reach up high, move a few dishes in your house to a place she can reach them.

Living far away from your parents can make it more difficult to predict your parents' needs. Ask friends or relatives who've visited your parents recently about what home safety accommodations you might need to make in your home. Ask your parents about ways you can make your home more comfortable for them.

In general, most people experience decreased mobility as they age. Even if a parent doesn't use a walker or a wheelchair, he or she may move slower. Older adults also commonly have reduced strength and stamina. Vision, hearing and the sense of smell also often decrease as you get older. Keep these in mind as you consider home safety changes to your home.

Make simple home safety changes

What home safety changes you make depends on your parents' needs. But, in general, here are some easy ways to make your home safer for older adults.

Remove scatter rugs
Unless they're attached firmly to the floor, remove all scatter rugs from areas of your home that your parents will use. Loose scatter rugs are easy to snag a toe on and are the cause of many falls.

Brighten your lighting
Good, bright light is essential to helping your parents see their way inside and outside your home, reducing the risk that they'll fall. Bright lighting in kitchen work areas reduces the risk of burns and cuts. Use at least 60-watt bulbs in most rooms and at least 100-watt bulbs for reading. Place night lights through key pathways in your home, for instance the route to the bathroom.

Make steps stand out
If your parents will use your stairs, make sure the staircase is free of clutter and brightly lit. Consider ways to make your steps easier to see. One idea — use brightly colored electrical tape to mark the edge of each step. Also, a sunlit window at the top or bottom of a staircase can cause glare, making it more difficult to see the steps. Draw the window shade and brighten the overhead lighting.

Hide electrical cords
Move lamps and other appliances closer to the walls so that electrical cords don't extend into traffic areas. Cords may be difficult to see by older adults with low vision and could be a tripping hazard. If you must extend a cord across an area where your parents' will walk, use tape to secure the cord to the floor and attract attention to it. Don't cover the cord with a rug.

Rearrange your furniture
Move low furniture, such as coffee tables, out of high-traffic areas. Another consideration when you're rearranging, move chairs closer together. This can make conversation easier if your parents' have difficulty hearing.

Lower the water temperature
Most hot water heaters are set at 150 F — hot enough to scald within seconds. If you have access to your water heater, turn the temperature down to 120 F or the low setting. If you can't adjust your water heater, consider faucets and valves that prevent scalding — for instance, when someone flushes the toilet while you're in the shower.

Use a bathmat
Nonslip mats and strips applied to the floor of your bathtub or shower will reduce the risk of falls. A wet floor can be just as slippery as the tub, so use a bathmat or textured strip outside the shower, too.

Adjust your chair cushions
Getting out of a soft-cushioned or low chair can prove challenging. Put a board under soft cushions. Raise the height of a chair by placing a pillow or folded blanket on top of the seat.

Move bedroom lamps closer to the bed
Lamps and lighting in the bedroom should be easily reached from the bed. That way your parents won't need to walk from the light switch to the bed in the dark.

Consider more permanent adaptations for longer stays

If your parents are staying for a long period of time or if they visit often, consider more permanent changes to your home. For instance, grab bars in the shower and around the toilet could make the bathroom even safer. Assistive devices, such as reaching tools to reach objects up high or jar openers for people who have difficulty gripping, can make life easier. Your parents may already have their own assistive devices they can bring from home. Or you can purchase necessary tools at a medical supply store or online.

Aging parents: Information you need in case of emergency

Aging parents: Information you need in case of emergency

If your aging parents were to have a medical emergency, could you provide the vital information doctors would need to care for them? Do you know the names of your aging parents' doctors? Is your mom taking any medications? Has your dad ever had any surgery?

If you're like most people, you probably don't know the answers to some of these questions about your aging parents. It only takes a few minutes to collect and write down this vital information. And it can save precious time in an emergency.

"Sometimes a parent isn't able to give medical information when an emergency arises, so emergency medical personnel must rely on the adult children or a spouse for that information," says Paul Takahashi, M.D., a specialist in geriatrics at Mayo Clinic, Rochester, Minn. "These are things you should know. Just as you fill out those emergency cards for your kids in school, you should have similar information available about your parents."

Below — in order of importance — is a list of 10 things you need to know about your aging parents' health.

  1. Names of doctors. If you don't know anything else, this is probably the most important piece of information. Why? Chances are good that your aging parents' doctors can provide much of the rest of the information needed as well as more details about your parents' specific health histories.
  2. Birth date. Often medical records and insurance information are cataloged according to birth date. This can improve communication in an emergency or a crisis.
  3. List of allergies. This is especially important if one of your aging parents is allergic to medication — penicillin, for example.
  4. Advance directives. An advance directive is a legal document that outlines a person's decisions about his or her health care, such as whether or not resuscitation efforts should be made and the use of life-support machines.
  5. Major medical problems. This includes such diseases as diabetes or heart disease.
  6. List of medications. It's especially important that a doctor know if your parent uses blood thinners.
  7. Religious beliefs. This is particularly important in case blood transfusions are needed.
  8. Insurance information. Know the name of your parents' health insurance provider and their policy numbers.
  9. Prior surgery. List past medical procedures, such as cardiac bypass surgery.
  10. Lifestyle information. Do your parents drink alcohol or use tobacco?

To help you care for your aging parents, fill out this downloadable emergency medical information form and keep it with you in your wallet or purse.

Aging parents: Five warning signs of health problems

Aging parents: Five warning signs of health problems

Now that your parents are getting older, you want to make sure that they're taking care of themselves and staying healthy. But it's difficult to monitor the health of your aging parents from miles away. Use your next visit with your parents to ask about their health and find out if there's anything you can do to help them maintain their independence.

Sometimes your parents won't admit they need help around the house. Other times they just don't realize they need help. Here are five things to look for on your next trip home, to help you gauge whether your aging parents need assistance.

1. Have your aging parents lost weight?

Many people think that being thin is healthy, but losing weight without trying is a sign that something's wrong. Weight loss could indicate a significant health problem in your aging parents, such as:

  • Cancer
  • Dementia
  • Depression
  • Heart failure
  • Malnutrition

Talk to your parent if you think your parent's weight loss may be a sign of illness. Encourage him or her to schedule a doctor's visit. Note, though, that the reason behind your parent's weight loss isn't always disease-related. Your parent could be having difficulty finding the energy to cook, grasping the tools necessary to cook or reading labels or directions on food products. Age-related changes to your parent's body could mean that nothing tastes as good as it used to. Talk to your parent about your concerns. Together you can find ways to make cooking easier or to make food more appealing.

2. Are your aging parents safe in their home?

Take a look around the home, keeping an eye out for any red flags that might indicate that your parents are having trouble maintaining their home. Are the lights working? Is the heat on? Has the well-maintained yard become overgrown and wild? Are there dirty dishes in the sink? Is the home cluttered with piles of newspapers and magazines?

Think in terms of safety. Do your parents have difficulty navigating the narrow stairway? Have your parents mentioned any recent falls or injuries? Note any changes in your parents' hearing and vision. Difficulty reading directions on prescription medications or difficulty hearing a doctor's advice or instructions could pose safety threats.

Any big changes in the way your parents do things around the house could provide clues to their health. Scorched pots could mean a parent with dementia is forgetting about dinner cooking on the stove. Neglected housework could mean depression is robbing your parent of the motivation to take care of the home. Light bulbs that haven't been replaced could indicate that physical impairments make it impossible for your parents to keep up with the regular maintenance around the house.

Point out potential safety issues to your parents. Together you may be able to devise a plan to fix these problems.

3. Are your aging parents taking care of themselves?

Pay attention to your parents' appearance. Notice if they're keeping up with their usual personal hygiene routines. Are your parents' clothes clean? Do your parents appear to be taking good care of themselves?

Failure to keep up with daily routines, such as bathing, tooth brushing and other basic grooming, could indicate health problems. Dementia, depression or physical impairments could be to blame.

4. How are your aging parents' spirits?

Note your parents' moods. Everyone has good and bad days, but a drastically different mood or outlook could be a sign of depression or other health concern. Ask your parents how they're feeling. Do they seem withdrawn or blue?

Talk to your parents about their activities. Are they still connecting with friends? Have they lost interest in hobbies and other daily activities? Are they involved in social organizations or clubs? If they're religious, do they attend regular services?

Tell your parents if you think they seem down or depressed. Encourage your parents to see their doctor and talk about their feelings.

5. Are your aging parents having difficulty getting around?

If your parents have any health conditions that make it difficult to get around, they may have difficulty caring for themselves. For instance, your parents may experience muscle weakness, joint problems and other age-related changes that make it difficult to move around.

Pay attention to how your parents are walking. Are they reluctant or unable to walk usual distances? Is knee or hip arthritis making it difficult to get around the house? Does your parent need a cane or walker? Talk to your parents about ways to make getting around easier.

If your parents are unsteady on their feet, they may be at risk of falling. Falls can cause major injuries and even death in older adults. The good news is that you can help your parents prevent falls by making their home safer and helping them stay active.

What to do if you have concerns about your aging parents

Talk with your parents if you have any concerns about their health and safety. Knowing that you're concerned about their health may be all the motivation your parents need to see their doctor. Some parents may need a little more encouragement, so let them know that you care about them and that you're worried. Consider including other people who care about your parents in the conversation, such as other relatives, close friends or clergy.

Together you and your parents can come up with solutions to problems around the home. Perhaps your parents could use assistive devices to help them reach items off shelves or to help them stay steady on their feet.

In talking with your parents, you might decide that it's time for them to get some help around the house. Home care service workers can help with small tasks, such as errands and cleaning. Or it may be time to consider a long term care facility, such as an assisted living center.

If your parents aren't willing to listen to your concerns or if they dismiss your claims, you can take other measures. Call your parents' doctors for guidance. Your parents' doctors can't discuss private information with you, but they may be glad to hear your insights. Some signs of medical problems aren't easily spotted in a doctor's office, and your concerns may help the doctor understand what to look for in your parents on their next visit.

You can also seek help from local agencies. For instance, the county in which your parents live may have social workers who can evaluate your parents' needs and put them in touch with pertinent services, such as home care workers and help with meals and transportation. Your local agency on aging — which you can find using the government's Eldercare Locator — can connect you with services in your parents' area.

Making your loved one comfortable during the last days of life

Making your loved one comfortable during the last days of life

The doctor says your loved one is dying. Though you knew this time would come eventually, you might not feel prepared to let your loved one go. But you can be prepared to help make your loved one's last days of life as comfortable as possible. And understanding what to expect can reduce the anxiety you feel as the time of death draws near.

Understand the common signs and symptoms of impending death. Though some signs, such as irregular breathing and confusion, can be distressing, know that these are normal parts of the dying process.

Whether you've decided to bring your loved one home or you're planning to keep vigil next to his or her bed in the hospital, you can take simple steps to ease the anxiety for both you and your loved one.

How doctors can tell when death is approaching

Predicting exactly when someone will die is very difficult. Doctors can give estimates in terms of months, weeks or days. But some terminally ill people will seem to get sicker yet suddenly get better. Others will progress quicker than expected toward death.

In general, several signs can indicate that your loved one is beginning the dying process. This is called the pre-active phase of dying and it generally begins about two weeks before death, but this can vary. Signs that your loved one has entered this phase include:

  • Difficulty getting out of bed. Many formerly active people may find they no longer have the strength or energy to get out of bed.
  • Restlessness. This may manifest as agitation or the need to be moved or repositioned often.
  • Withdrawal from activities. Your loved one may no longer want to participate in social activities he or she used to enjoy.
  • Increased need for sleep. Your loved one may spend most of the day asleep.
  • Loss of appetite. It's natural for people who are dying to gradually reduce the amount they eat and drink. Don't force your loved one to eat and don't take it personally if he or she refuses a meal you've spent time preparing. Provide only the foods that your loved one wants. Eating or not eating won't slow down or speed up the dying process.
  • Pauses in breathing. This can happen when the person is asleep or awake.
  • Difficulty healing. Wounds and infections may not heal.
  • Swelling in the arms and legs. Swelling may occur in other areas of the body, as well.
  • Seeing people who have already died. Your loved one may speak about seeing or feeling the presence of loved ones who have died.
  • Settling unfinished business. This might include calling for people he or she hasn't seen in many years or expressing a need to tie up loose ends.

Sometimes your loved one might feel as if death is near. This may be another sign that your loved one is in the pre-active phase.

Preparing for the last phase of life: Choosing where to die

Talk with your loved one about his or her wishes for the last phase of life. These conversations can be uncomfortable and difficult, but they provide your loved one with the ability to maintain control and help in planning. Talk to your doctor or your loved one's doctor for help getting the conversation started.

If your loved one has had a chronic illness for some time, you might have already discussed his or her wishes about end-of-life care. If not, you might have an idea, based on your knowledge of the person, where he or she would like to be in the last days of life. Most people say they'd prefer to die at home, but it isn't always possible. Consult your loved one on his or her preferences for care, including:

  • Home care. Many people choose to die in the familiarity of their own home or the home of a family member. This might require you to take on the role of caregiver, but you might also choose to have home-care services to assist you.
  • Hospice care. Hospice care takes place in a variety of settings. The majority of hospice care in the United States occurs at home. Hospice services might also be provided at a 24-hour care setting. Hospice personnel might offer nursing home services, where they supplement the nursing home's care with hospice services.
  • Hospital. Some people prefer the comfort of having nurses and doctors nearby at all times. In a hospital, your loved one is cared for by nurses, though you can help with some of the caregiving if you wish.
  • Nursing home. Like hospitals and in-patient hospices, nursing homes have medical staff on duty at all times. If your loved one needs more advanced care, this might be an option. Also, some terminally ill people choose nursing home care to take pressure off their families.

Also consider costs for each type of service. Medicare or Medicaid may cover some of the costs, depending on your loved one's situation. Discuss your options with your loved one's health care team or with a social worker.

Spirituality at the end of life

Many terminally ill people seek religious or spiritual guidance at the end of their lives. Spirituality is the search for the sacred and the pursuit of meaning and purpose in life. It might be described as a dynamic process of turning inward to reflect on your life, but at the same time turning outward to seek that which is beyond daily struggles. For many people, spirituality is found in religion. Others find spirituality in nature, art, music or life in general.

As your loved one feels he or she is nearing the end of life, he or she may talk more often about spirituality. Your loved one may talk about the meaning of life or his or her relationship with a higher power. Talk with your loved one about spirituality if he or she expresses a desire to do so. Ask open-ended questions about his or her beliefs, such as, "What do you think your purpose in life has been?" or, "What is it that you still hope to do or accomplish in your life?" This will encourage him or her to continue talking about spirituality. Depending on your loved one's customs and beliefs, you may want to invite a spiritual leader — be it a pastor, rabbi or community elder — to visit and discuss the subject.

Do what's appropriate for your loved one's situation. If your family normally doesn't speak of spirituality openly, don't force your loved one to do so. But don't be reluctant to discuss spirituality if your loved one brings up the subject.

What to expect in the last days of life

Your loved one may begin to show other signs when death is imminent. This is called the active phase of dying and usually begins about three days before death. How people die varies greatly, but you can expect some of the common signs, including:

  • Cool arms and legs. While the hands, arms, feet and legs will feel cool to the touch, your loved one's trunk will feel warm.
  • Bluish coloration. Fingers, earlobes, lips and nail beds may turn blue.
  • Purple coloration on the legs. Also called mottling, this blotchy coloring is one of the clearest signs that death is approaching.
  • No longer eating or drinking. Your loved one may not feel like eating, or he or she may no longer be able to swallow.
  • Congested breathing. Noisy breathing is sometimes called the "death rattle." As secretions from the lungs build up, your loved one may no longer be able to cough up these secretions. Eventually the secretions will dry up because your loved one's body may become dehydrated after he or she stops eating and drinking. Medications can control congestion if your loved one feels uncomfortable.
  • Irregular breathing. Breathing patterns may change in depth and rate. Your loved one may also stop breathing for several seconds at a time. Keep in mind that your loved one generally isn't aware of these changes.
  • Discolored urine. If your loved one stops taking in liquids, there will be less urine and it will be darker in color.
  • Incontinence. As muscles that control bowel movements and urination relax, your loved one may experience incontinence.
  • Blurred vision. His or her eyes may appear glassy and unfocused.
  • Limited ability to communicate. Your loved one may lose the ability to speak. He or she most likely can still hear you.
  • Confusion and agitation. This can be subtle or more severe, involving jerking motions, hallucinations or delirium.
If your loved one: Try these comfort measures:
Has arms and legs that feel cold to the touch, but the trunk feels warm Use a blanket or sheet to keep him or her warm.
Is no longer eating or drinking Resist the urge to force your loved one to eat or drink. Have water on hand with a straw, since lifting a cup may become difficult. Keep your loved one's mouth moist with a sponge, swab or a spray bottle. Use lip balm or petroleum jelly on the lips.
Has congested breathing or a rattling sound when breathing Keep the head of the bed raised and reposition your loved one every few hours.
Has labored breathing Direct a fan toward your loved one's cheek, try opening a window to let in fresh air, or try other sitting positions that may ease labored breathing.
Has incontinence Keep your loved one clean and dry using incontinence pads or a catheter. Reposition him or her every few hours.
Has reduced or blurry vision Use soft lighting. Stand near the head of the bed so that your loved one can see you better.
Has an overactive sense of hearing Avoid loud noises and television. Try soft music.
Is no longer able to speak Your loved one can still hear and feel. Keep talking in a soothing voice and hold his or her hand.
Shows disorientation, confusion Speak in short phrases. Repeat the names of people in the room often and remind your loved one of the date and time.
Is agitated Create a quiet and peaceful atmosphere. Have a minimal number of people in the room.

Work with your loved one's doctors and nurses to make death as symptom-free as possible. Many signs and symptoms of imminent death can be treated, such as pain, anxiety and delirium. While these treatments won't stop your loved one from dying, they can make the process easier for both of you. Report any signs and symptoms that you are unsure of and don't hesitate to ask questions if you're unsure of what's going on.

Even in a coma, your loved one can still hear you. Though he or she might be unable to speak or might seem asleep, continue talking in a soothing voice. Reassure your loved one that you'll stay nearby. Hold your loved one's hand or stroke his or her hair.

In the last few days of life, consider what your loved one would want. Was he or she someone who enjoyed having lots of friends and family around? Perhaps you could invite family over to sit with your loved one to share stories and reminisce. If your loved one was a solitary person who enjoyed quiet time alone, perhaps that would make him or her most comfortable.

The final surge of energy

Often when people are dying, they will reach a period of time when it seems they're getting better. Your loved one may wake up and may be able to communicate with you. These surges can last for a few hours to a few days. Though it can be confusing for you to see your loved one with renewed vitality, keep in mind that this is a normal part of the dying process, and your loved one may not actually be getting better. He or she may soon return to illness. The final surge of energy is often a good time to gather your family and close friends to say final goodbyes.

Keeping vigil

For many families, keeping vigil near the dying loved one's bed is an important show of support and love for the dying person. Whether you do this depends on your own customs and beliefs. If you decide to keep vigil, continue speaking to your loved one. Express your love for him or her, but also let your loved one know that it's all right to let go. When keeping vigil, understand that some people prefer to die alone. People who were independent or private in life may choose the same in death. Don't hesitate to step away from your loved one's bedside from time to time to allow for this.

Early-onset Alzheimer's: Financial challenges

Early-onset Alzheimer's: Financial challenges

Early-onset Alzheimer's is a form of the disease diagnosed in people younger than the traditional retirement age of 65. Such a diagnosis can pose serious financial challenges, especially if you're the main wage earner of your family and your health insurance is provided through your job.

What do I tell my boss?

"We usually recommend disclosing the diagnosis to people you interact with on a daily basis," says Glenn Smith, Ph.D., a neuropsychologist at Mayo Clinic, Rochester, Minn. "Depending on your job situation, you may be able to work with your employer to create a plan to modify your work schedule and responsibilities as needed."

The Americans with Disabilities Act (ADA) requires employers with more than 15 people on staff to make "reasonable" accommodations for employees diagnosed with Alzheimer's disease.

Eventually, your Alzheimer's symptoms will progress to the point that you can no longer work. Investigate your options for early retirement. Your employer may include disability provisions in pensions and insurance plans.

Start planning now

The first thing to do is discuss your immediate and future financial needs with someone you trust. Choose someone who has a history of making wise financial decisions. You may even want to hire a professional financial advisor. Some social service agencies offer these services at reduced rates for people with low incomes.

This helper needs to know all about your financial and legal affairs. One of the first tasks is to get all your important documents together.

  • Wills
  • Medical and durable power of attorney
  • Insurance policies
  • Stock and bond certificates
  • Pension and other retirement benefit summaries
  • Tax returns for the past few years
  • Bank account statements
  • Outstanding loans
  • Monthly bills
Financial assistance available

Because Alzheimer's disease is eventually a disabling illness, you may qualify for disability assistance from some government programs.

  • Social Security Administration. Two special programs administered by the Social Security Administration may be of help to you. Both require documentation from your doctor that you are unable to work.

    Social Security disability benefits are available to former wage earners under the age of 65 who are no longer able to work because of a disability. To be considered disabled for purposes of Social Security disability benefits, you must be unable both to do work that you did previously and to adjust to different work because of your medical condition.

    Supplemental Security Income (SSI) provides a minimum monthly income to people who have limited assets and income and who are 65 or older, blind or disabled.

  • Medicaid. Medicaid provides medical assistance for low-income Americans. Within federal guidelines, each state establishes its own eligibility requirements, decides the services to be covered, sets the payment for services and administers its own program. Consequently, benefits and requirements vary from state to state. Check with your local social services agency for more information.
  • Medicare. Medicare is a federal health insurance plan for people over the age of 65, as well as for some people with disabilities who are under age 65.
  • Veterans Administration. If you're a veteran, you may qualify for government benefits. Check with the Department of Veterans Affairs (VA) and your local VA hospital.
Diagnosis changes life

A diagnosis of early-onset Alzheimer's typically throws all the earlier plans you made for your life into a tailspin. Your future is now full of unknowns. But you can erase at least one of these question marks by developing a financial plan for your new future. Taking these concrete steps can ease your mind and help you cope with future challenges.

Health News from Medical News Today